Whistler

We were blessed with a weekend away in Whistler. We had a fun time checking out the sites and wildlife!

Ups and Downs

So the last few weeks have been up and down with Ethan going from trace to .03 for protein. I have to admit I was certainly feeling anxious on the days when he was up. I have had many people ask me if he will continue to fluctuate like this forever? I wish I knew the answer...  We continue to take each day as a gift and I try not to focus on the future, although some days the stress and anxiety get the better of me.

Cast all your Cares

Ethan has been a full trace of protein for the last 6 weeks. I have been testing him every few days, and yesterday I discovered that Ethan had gone up to 0.3 of protein. I decided not to tell Ethan, he didn't even ask what his results were by the way. I am hoping and praying that this is just temporary and will go away before progressing to anything more serious. I keep reading the quote I posted the other day, as well as the verse from 1 Peter 5:7 "Cast all your cares on him because he cares for you".

Quote

Came across this quote today by Ann Voskamp..."Stress isn’t a situation, only a state of mind. And my mind can choose the peace of God that passes all understanding".  

Back to School

Today was the first day of Grade 5 and 7 for the boys. I can hardly believe how grown up they are getting. Gone are the days of needing Mom to come into the School with them. I was lucky to receive a smile and a wave and off they went. I had to run after Ethan to get him to say goodbye! Such a change from previous years. He did have a moment of anxiety on Friday when we were checking out the class lists for the coming year. There are 4 Ethan's in his grade and all 4 of them happen to be in his class this year.

Ethan continues to be a full trace of protein, hoping and praying that it doesn't progress any further. I have been testing him every few days to make sure we keep on top of things.

Trace

Well, we are a few weeks into Summer, although the weather hasn't been all that summer like. We have been managing to keep busy and go on a few day trips here and there. Most of all the boys are enjoying the lack of schedule as am I. Not having to worry about homework has been wonderful.

I tested Ethan this evening and was a bit shocked to discover he was a full trace. I must admit that my heart skipped a beat. It has been so long since he showed any trace of protein. It makes me wonder, will he always have to worry about protein? I am going to be keeping a closer eye on things for awhile, especially since I have noticed some puffiness in Ethan's eyes in the morning. Will keep you posted!

Healing

Ethan has been struggling with fevers and sore throats these past few weeks. If you are familiar with our story, you will know that fevers can trigger Ethan's Nephrotic Syndrome. Well any kind of sickness or allergies really, but for some reason, fevers have almost always resulted in a relapse. Each time he gets a fever, I am left feeling cautious, nervous, waiting and wondering.... I am happy to report that despite fevers and sickness, Ethan continues to be healthy and protein free.  Ethan doesn't talk a lot about his condition and especially his feelings, like most males. But when he does talk about it, I get a unique insight into his side of things. I can tell that his relapses have been on his mind, as he asked me last night what his test results were. I gave him the thumbs up sign and off he went with a smile! Today, as I was driving to pick Adam up from School. He said this to me " Mom, you know I think I am healed, because with all of my fevers, I still don't have protein." I smiled and told him that I think he is healed too. Which is a scary statement for me to make, since we don't know the future. More and more I am feeling that this is the place where God is leading us.