Saturday, August 15, 2009
Diagnosis- Anniversary
Today is the 7th year anniversary of Ethan's diagnosis of Nephrotic Syndrome. All week I have been thinking about Ethan and our journey that has led us to this point. All the many hard things he and we have endured, and the many blessings that we have received as well. I must admit that it has been painful this week, remembering each relapse, treatment tried, the countless doctors and lab appointments.At the moment, Ethan is still doing well, and we are so very thankful for that. As for what may come, I do not know.... I have no idea if and when Ethan will relapse again, or if this is "The" time he will outgrow this disease. I have been wrestling with these questions for some time now, and I have come across a great song. It is called "Dive", by Steven Curtis Chapman. In the song it talks about taking the leap of faith, giving God control, that sink or swim, you're diving IN! I have posted the link below if you would like to take a look. I found it very encouraging, to a lifelong worrier, diving in and letting God have complete control is my ultimate GOAL!
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You guys have come a long way and even though through the years Ethan has been off and on the medications, God has been guiding you and helping you through all parts, hard and easier. Keep going and keep the strength he provides. My niece has had a form of epilepsy since she was just about 2 also and the Doctors keep hoping she will also "grow" out of it. I know it can be frustrating and we wonder why these things happen to our babies. Even though we don't have that answer we can at least rely on Him to help us along the way. Love you friend.
ReplyDeleteJo