Today also marks the one year Anniversary of my Grandma Douglas's passing, my Mom's Mom. She was a special woman of God, and I really wish she could have seen how happy and healthy Ethan is today. You see, my Grandma and Ethan shared being on prednisone together. She understood all too well what life was like on prednisone and we would often compare the side effects each of them was feeling. I miss talking to her, even though she had a hard time hearing these last few years. She was a very caring and joyful woman despite her many health challenges, and she is the kind of woman I aspire to be.
This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Thursday, October 8, 2009
Thankful
I haven't updated in a few weeks, mostly because there really hasn't been much to say. Ethan is doing fantastic, so much to be thankful for. Which is the reason and inspiration behind this post, being thankful for each and every day that he is off prednisone. It has been wonderful to have some space and perspective to reflect on all that we have gone thru these past few years. I have enjoyed that Ethan has only missed 1 day of school so far, and I find myself checking my cell phone less and less to see if the school has called. I am finally starting to feel like I can relax and not be on full alert all the time. I was never really able to make plans for my days, when the boys were in school, because I never knew when I would get a phone call to come and pick him up. Although Ethan still says he doesn't like school, he is going, and without much complaining, which is a huge improvement over the past 3 years. Although this school year has not been without it's challenges, nothing is ever easy! I am so thankful that Ethan is NOT on prednisone at the moment, Grade 3 moves at a much faster pace. If he were on prednisone, I know it would make his adjustment to Grade 3 even tougher.
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