One verse that has been coming to mind a lot lately is Lamentations 3:22-23 " Because of the Lord's great love, we are not consumed, for his compassions never fail. They are new every morning, great is your faithfulness." I thought this was a perfect verse for how I am feeling. Even though many times I felt like I was being consumed by Ethan's illness, God was faithful and was always with me.
This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Thursday, February 18, 2010
9 Months
Saturday is the official day that marks 9 months of Ethan being off prednisone. I must admit that the more time that goes by without a relapse. The more I am finding myself able to relax, gone are the days where I would test Ethan's urine, sometimes more than once a day. I am finally able to go a few days between testing. Although, I still breathe a sigh of relief every day that I see a yellow stick, instead of green. I don't know if I will ever get to the point that I can fully relax, maybe that will come after a few years. The relapse rate is 90% for Nephrotic Syndrome. So I know that even though Ethan is doing well at this point, he could still relapse. The longest Ethan has made it without a relapse is 14 months.
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