The boys finished School yesterday. I can hardly believe Adam has finished Gr. 5 and Ethan Gr.3. I am so thankful for a year of good health for Ethan. It made going to School so much easier, although Ethan still does not like School. His first words to me when I picked him up on his last day of School " And my year of torture is over". He simply could not wait to get in the car and drive away from the School.
Last week Ethan started showing a trace of protein in his urine. Which is just slightly above normal, it is not enough for example, to warrant medical intervention. But it still makes my heart skip a beat, as that has been the start of many relapses for Ethan in the past. Thankfully after 5 days, Ethan went back down to negative, and I felt myself again breathing a huge sigh of relief. Even after 13 months, I still have some worry over when the other shoe will drop. I find myself wondering, is this over, or is this just a nice break? Only God knows what the future holds, I must constantly remind myself to give this over to God, that he is in control. Some days are easier than others, and on those hard days I find some good worship music to remind me of what I need to do. I found a song by Francesca Battistelli called "I'm Letting Go" that I really loved. Here is the chorus that I found especially meaningful to my life.
I'm letting go, of the life I planned for me and my dreams
I'm losing control of my destiny
It feels like I am falling and that's what it is like to believe
So I'm letting go
This is a giant leap of faith
Trusting and trying to embrace
The fear of the unknown, beyond my comfort zone
So I am letting go
This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Tuesday, June 29, 2010
Tuesday, June 15, 2010
June
As School nears completion, the boys are getting all of their finished School work sent home. I enjoy reading thru what they have learned throughout the year. I came across Ethan's Bible book, which they use at School to learn about various Bible stories and how it applies to life. One entry was on starting a prayer journal. Ethan's prayer request was dated just before we went to our last Children's appt in April.It was so cute I had to share it with you. " My prayer request would be for my Kidney's to work perfect so I don't need a needle". Then there was a section where you could write when it was answered, he wrote, "YES".
I asked Ethan about this and he told me that he was very scared he would need a Biopsy, hence the needle.
Yes we are so glad that Ethan continues to be healthy, and we hope to enjoy another summer relaxing and having fun!
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