This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Tuesday, November 19, 2013
Relapse
Ethan has once again relapsed, he started spilling protein shortly after we dropped his dose down to 5mg every other day. Which is the same point where he relapsed last time. This morning he started back on his full dose of prednisone at 60mg every day. Once he is negative for 3 full days, we are to call Children's back and they will advise when Ethan will start on the chemo drug. I feel so bad for Ethan as he once again has to start this process all over again. He has hardly grown in the last year since starting prednisone and yet he has gained almost 20 pounds because of all the prednisone. He definitely does not like how the prednisone has changed his face. Please pray that Ethan will be able to get to negative quickly so that he can get to the every other day dose. The every day is very hard on him and us. I have no idea what to expect with chemo, hoping they will tell us more in a few days.
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