Update

Tonight,  Ethan will move up to a full dose of the MMF that he has been taking these last two weeks. It is double the strength he currently has been taking. I am so thankful that these last two weeks have gone much better than we anticipated. Ethan has had some stomach pain and whenever I ask him how he is, he says he is tired. We have also noticed a big reduction in his appetite, some days he seemed to lose all interest in eating. Which is one of the side effects of the MMF, but it is weird to see him go from being super hungry all the time on prednisone to not really having much interest in food.

Ethan did come down with his first cold while on the MMF and Prednisone last week. I was super nervous about this, as I had no idea what to expect. So in a way, I am glad to have it over with and it gives us more of an idea of what to expect. He did get the cold more severley than his brother and it also took him longer to recover. But other than that, we are so thankful that the cold did not trigger any protein and he did not have a fever or any other complications. One less thing to worry about!

Tomorrow is also a big day for Ethan as he will reduce his prednisone to 1pill (5mg) every other day for the next two weeks. Then if all goes well at the end of those two weeks he will officially be finished with Prednisone. BUT, this is the dose that Ethan has been relapsing at for the last few months. So I have no idea what to expect. Children's did warn us that he might still relapse 1-2 times even with the MMF. Anymore than that, and they would look at switching drugs for him. So please pray for Ethan, that he would be able to handle the full dose of the MMF without any significant side effects. As well as we desperately want him off Prednisone, so please pray that he will be able to get off this time. Thank you so much, Laura, Jeff, Adam & Ethan