One verse that has been coming to mind a lot lately is Lamentations 3:22-23 " Because of the Lord's great love, we are not consumed, for his compassions never fail. They are new every morning, great is your faithfulness." I thought this was a perfect verse for how I am feeling. Even though many times I felt like I was being consumed by Ethan's illness, God was faithful and was always with me.
Thursday, February 18, 2010
9 Months
Saturday is the official day that marks 9 months of Ethan being off prednisone. I must admit that the more time that goes by without a relapse. The more I am finding myself able to relax, gone are the days where I would test Ethan's urine, sometimes more than once a day. I am finally able to go a few days between testing. Although, I still breathe a sigh of relief every day that I see a yellow stick, instead of green. I don't know if I will ever get to the point that I can fully relax, maybe that will come after a few years. The relapse rate is 90% for Nephrotic Syndrome. So I know that even though Ethan is doing well at this point, he could still relapse. The longest Ethan has made it without a relapse is 14 months.
Monday, February 8, 2010
Life
Well the dreaded stomach flu, hit our house this weekend. I was the lucky receiver with Adam following a few short hours later. So far Ethan and Jeff have managed to stay healthy. I have not been sick all winter so I guess it was my time to catch something.
Ethan has been doing great, he has improved his grades in School, he received the only perfect score on a Space test last week. He was very happy about that, and his stomach and anxiety issues have been improving as well. Ethan and his class enjoyed a wonderful day of snowshoeing at our local ski mountain on Friday. Ethan said the first hour was all uphill and many kids were complaining, he said he didn't complain though ☺. I am so thankful that Ethan felt well enough to enjoy this outing with his class, if he was on prednisone, I know it would have been much harder.
Adam's class is going snowboarding/skiing this Thursday, he is very excited about that too! Adam has been doing very well in Grade 5, he is certainly getting more independent, he loves Social Studies and Science. He also received a perfect score on his Science test, so very proud of my boys!
Ethan has been doing great, he has improved his grades in School, he received the only perfect score on a Space test last week. He was very happy about that, and his stomach and anxiety issues have been improving as well. Ethan and his class enjoyed a wonderful day of snowshoeing at our local ski mountain on Friday. Ethan said the first hour was all uphill and many kids were complaining, he said he didn't complain though ☺. I am so thankful that Ethan felt well enough to enjoy this outing with his class, if he was on prednisone, I know it would have been much harder.
Adam's class is going snowboarding/skiing this Thursday, he is very excited about that too! Adam has been doing very well in Grade 5, he is certainly getting more independent, he loves Social Studies and Science. He also received a perfect score on his Science test, so very proud of my boys!
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