This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Wednesday, December 28, 2011
2011
With the dawn of a new year upon us, I am reminded of all that has happened this year. My new year’s resolution last year was to run my first 10km race in one hour or less. You see I am a competitive person and two years prior, My Dad, ran it in one hour and 12 seconds. I knew I had to try and beat him, although I guess to be fair I would have to run it in that time at the age of 59 to compare!
I grew up running track and field and yet it had been many years since I laced up my running shoes. I trained diligently for 4 months before the race and I completed my first 10km last May in one hour and 6 seconds. It was also a special day for us as a family as my husband and boys were running in the 5km race.
This year, my goal is to run my first half marathon. I am a bit worried if my body can handle all the training required for that though. My plantar fascitis that I developed from last year’s training, is still giving me problems. I have some time yet to decide and I may have to put that goal on hold for this year if my feet continue to bother me as I train.
This year was also another year of Excellent Health for Ethan and his Kidney’s. We did have a few bumps along the way, but nothing that required him to have anymore medication. I am still in awe that we just passed the 2 and a half year mark of Ethan being off prednisone. It really is a miracle that he continues to be healthy and I give all the praise and Glory to my Lord and Saviour, Jesus Christ! For he has been faithful, even in our darkest nights.
It is with great expectation that we look ahead to 2012, to see what the future will hold, and what dreams and goals will be achieved this year.
Tuesday, December 27, 2011
Merry Christmas
For to us a child is born, to us a son is given, and the government will be on his shoulders. And he will be called Wonderful Counsellor, Mighty God, Everlasting Father, Prince of Peace. Isaiah 9:6
In the days and weeks leading up to Christmas, this is the verse that has been impressed upon my heart. I am so thankful for the manger, for the birth of my Saviour. I pray that each and every one of you will feel God's peace and comfort this Christmas season.
Tuesday, October 4, 2011
Whistler
We were blessed with a weekend away in Whistler. We had a fun time checking out the sites and wildlife!
Ups and Downs
So the last few weeks have been up and down with Ethan going from trace to .03 for protein. I have to admit I was certainly feeling anxious on the days when he was up. I have had many people ask me if he will continue to fluctuate like this forever? I wish I knew the answer... We continue to take each day as a gift and I try not to focus on the future, although some days the stress and anxiety get the better of me.
Saturday, September 17, 2011
Cast all your Cares
Ethan has been a full trace of protein for the last 6 weeks. I have been testing him every few days, and yesterday I discovered that Ethan had gone up to 0.3 of protein. I decided not to tell Ethan, he didn't even ask what his results were by the way. I am hoping and praying that this is just temporary and will go away before progressing to anything more serious. I keep reading the quote I posted the other day, as well as the verse from 1 Peter 5:7 "Cast all your cares on him because he cares for you".
Wednesday, September 14, 2011
Quote
Came across this quote today by Ann Voskamp..."Stress isn’t a situation, only a state of mind. And my mind can choose the peace of God that passes all understanding".
Tuesday, September 6, 2011
Back to School
Today was the first day of Grade 5 and 7 for the boys. I can hardly believe how grown up they are getting. Gone are the days of needing Mom to come into the School with them. I was lucky to receive a smile and a wave and off they went. I had to run after Ethan to get him to say goodbye! Such a change from previous years. He did have a moment of anxiety on Friday when we were checking out the class lists for the coming year. There are 4 Ethan's in his grade and all 4 of them happen to be in his class this year.
Ethan continues to be a full trace of protein, hoping and praying that it doesn't progress any further. I have been testing him every few days to make sure we keep on top of things.
Ethan continues to be a full trace of protein, hoping and praying that it doesn't progress any further. I have been testing him every few days to make sure we keep on top of things.
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