Day 8

Day 8 and Ethan is still not negative for protein. He has gone to trace and then back up one level, back down to trace and now is holding steady at trace. I asked Jeff last night and Ethan this morning, if I should just call Children's today and say that he has been a trace for the last 3 days? Maybe they would take trace as okay and let him start weaning? Both Jeff and Ethan gave me the same answer which I thought was rather funny. Ethan said to me, "No Mom I have to be negative because if we wean too soon I will just have to go back on it again". Okay God, I get it, I have to be patient and wait!!! I just hate the side effects and want Ethan to feel better, waiting and watching is hard, I feel so helpless. Ethan had a great day at School on Tuesday as the stomach pills were helping and he is sleeping somewhat better with two melatonin a night. He had a bad night Tuesday night, his cough got worse and he had a lot of chest and back pain when he coughed. He did not want to go to School, but he had two tests and two projects to present. So I said he had to go and just try to make the best of it. I emailed his teachers and let them know he hadn't slept well the night before and that he may not be feeling his best that day. The support we have received from Ethan's School and teachers has been absolutely amazing. I am so thankful that my boys are able to attend a Christian School. His teacher emailed me that the class prayed for Ethan before class started. He said that after they had prayed for Ethan, he seemed to perk up a bit and had a good day. That made me feel so good, because I know how he struggles at times to get through the day. Ethan started on antibiotics yesterday afternoon for his cough, so hopefully once that kicks in, maybe he will be able to get to negative! Praying it doesn't take too much longer.