This blog is about my son's journey with Nephrotic Syndrome. As well as my personal thoughts and feelings as we journey along side Ethan.
Sunday, February 10, 2013
Here we go again!
Here we go again, for the past 2 weeks, Ethan has been back to negative for protein. But when I was getting into the shower and I happened to see foamy urine in the toilet, I knew that was about to change. Ethan was 0.1 yesterday and today he has gone up to 1.0. He has already gained a pound in fluid, and is again exhibiting signs of excess protein, pale, tired and lack of appetite etc. So for now we will have to do what we always do, WAIT. I hate waiting, always have and although I have gotten better at it, I still hate this emotional roller coaster of will he or won't he relapse? The frustrating part is that protein can come out of nowhere, overnight and for no apparent reason and other times it comes on because of a cold, allergies. Ethan is not sick this time, but it still can be from his last cold a few weeks ago. All I know is that it is not normal to have protein and I pray to God that this is not the end of his good health.
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