It's hard to believe that one week ago, we discovered that Ethan was having protein at 1.0. So it seems rather fitting that today his result would be the exact same, 1.0. This is great news and we are thanking God for answering our prayers. It is looking like we will avoid a relapse now after all. Ethan is feeling a bit better today too, less dizzy so that is also great news. He was very excited that he is coming down and is already thinking about when he can have some of his favourite salty chips! Although I am not ready to allow that just yet. I would say Ethan will be negative for protein in about 2-3 days if things continue to progress like they have.
I have to say that this week didn't bring out the best in me, I feel like everything I had learned over these last 10 years went right out the window. I replaced my trust in God with fear and anxiety, and I am not proud of that. To be honest, I am still scared, if protein could come on after 3.5 years, what's to say that it won't happen again when he gets sick? I guess it is a reminder that Ethan's Kidney's still don't function like ours do.
Our Sunday our Pastor said the following: " We need to live in utter moment by moment surrendered dependence on God"!
Thanks for sharing Laura, it's so tough to maintain hope when you fear going back to a dark place with your child. I have some experience with this and still forget to leave the anxiety in God's hands, even after he proves over and over again that he is faithful. I'm looking forward to hearing more good news in the coming days. :) Heather
ReplyDeleteThanks Heather, It helps to know I am not alone, thanks for all your prayers!
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