Sunday, January 20, 2013

3.0

3.0 is the number that Ethan is today, which is one level down from the highest, YAHOO!!! He continues to spill though which is not a good thing, but so far he is not showing any weight gain on the scale. His eyes are puffy and a bit swollen and he is complaining of a headache, achy and being very tired and thirsty. Probably due to all the excess protein in his body. So for now we continue to wait and see what happens. I hope to hear from the pediatrician tomorrow, but who I really want to talk to is Ethan's Nephrologist at Children's. Last time we saw him, he jokingly said he hoped to never see us again. I want to know what all this protein means, because we really felt like he had "outgrown' this disease like they have been telling us he would since he was diagnosed. Do we have to worry and wonder if a relapse is around the corner every time he gets sick again? I think I have sprouted a few new gray hairs this week, but trying so very hard to put this all in God's hands and I thank you all for praying, we do feel your prayers and it is what is keeping us going!

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