A day in the life!

Everyday, I hear the words, Mom, I don't feel well!!! I must confess that I have begun to despise those words. To me they mean I will again have to force Ethan to get up, get moving, eat something and all the while hoping he will make it to school. I am thankful that I don't have a job outside the home, I doubt I would be there very much. Everyday, I am faced with the decision, how sick is he? Can he make it to School today? If so, how long will he stay, and what can I get done in the quickest amount of time before the School calls me? For some reason, Ethan does not enjoy School, even though he is very good at it. His teacher is very proud of him for how little he does complain in class, but she can tell that he lacks the joy and zest that the other children do.  Even on those days when Ethan doesn't go to School, he still finds it very hard to engage in normal activities. He is either complaining of stomach pains or of feeling very nauseated. As we have now completed the prednisone part of his treatment. We are praying that God will give Ethan, and us as a family, a new "Normal"!!! One without doctors, lab tests, medications and side effects.