Race

It has now been one whole week that Ethan has been off prednisone. Since he has been off, his urine samples go between trace and negative. We would rather he was negative everyday, but the doctors say a trace is still okay. In our experience however, a trace is just the first step of a relapse, but I am not going there yet!!!!

Today was a big day for our family, we signed up to run a 5k race, and I had high hopes of all 4 of us running together. As the race drew nearer, Ethan began to get more anxious and had a complete meltdown the night before the race. He said he did not think he could run or walk and just wanted to sit on the sidelines. We did all we could to encourage him to try to make it, even promising a slush at the end of the race. From the 1k mark on, it was pure torture for me, by this point we were walking the race, Jeff and Adam had gone on ahead of us. I am a competitive person and could not stand to see people passing me. I was holding Ethan's hand and literally dragging him it felt like. I did not want Ethan to quit, I wanted him to be proud of the fact that he finished the race, in spite of his medical issues. Ethan and I did finish the race together at 53 minutes and 39 seconds. Next year, I decided that I will run on my own!!!! I am glad we did it he says, now that he is done, but he doesn't want to do it again!!!!