Waiting, Waiting, Waiting, this has been my life for the past 7 years... Waiting is something that I am not very good at, but I am learning. I have come a long way in the patience department, but then again I have had to. Everywhere we go, we have to wait, we must wait at the doctors office, for lab tests, and for hours sometimes as we wait to see Ethan's specialists. I am very blessed that Ethan is very patient and handles waiting extremely well, he gets that from his father!!!
When Ethan relapses, we must wait until his protein reaches a certain level before I can contact his doctors. This is when my anxiety levels go way up, now that I have been through this many times, I know what is coming. I find it very hard to sit by and watch Ethan suffer, as he gains weight rapidly from the protein and then from the prednisone. We are entering another season of waiting, now that Ethan has finished the prednisone part of his treatment. We must wait and see if his body can handle life without it. I wasn't sure I would ever see the day that he would be able to get off prednisone , we pray it lasts longer than a few weeks. We have also waited for healing for Ethan, every time he finishes treatment we wonder if this is the time he will be healed or outgrow this disease? But for some reason God has not answered our prayers for complete healing, he has however answered so many of our prayers and yours in ways that we never expected. One example would be, getting Ethan into the Nephrologist, when we were told that there were no openings for months. Only to receive a call half an hour later that they could see him the next day. Yes, that was a God thing!!!
We wanted to say Thank You to the many people who pray for Ethan and our family, you have no idea how much this means to us. On those very hard days when I don't think I can go on, when I am left wondering just Where is God in all of this? I receive an email with words of encouragement or a phone call to say we are praying for you. Then it all makes sense, he is with us.... I received such an email this morning as I was expressing to a dear friend my mixed emotions. Joy on the one hand and fear in the other. This is what she wrote to me: " I know you are scared to believe things won't suddenly change for the worse. I will dare to believe FOR you! I will pray for a season of healing, restoration, refreshment, and REST for your family from this chapter in your lives. I pray that a new chapter will open soon and you will be blown away by JOY". I am so blessed to have amazing friends!!! Below is a link to a video by John Waller,"While I'm Waiting". Which was also sent to me by my dear friend and has been the inspiration for this post. May it encourage you also.
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