Last day of Prednisone

Today was a milestone in Ethan's treatment, I gave him his last dose of prednisone this morning. YEAHH!!!! I am so happy yet so very nervous. So many questions and anxieties haunt my mind. As I reflect back on the last 6 months of our journey. I must confess these have been the most difficult that we have ever been through. Ethan was much sicker than he has ever been, despite the doctor's reassurances that Ethan would sail right through treatment. Ethan has fought the daily side effects of high doses of prednisone, weight gain, insomnia, mood swings, hair growth, bone and joint pain, stomach pains,lowered immune system. 

When it became apparent that the prednisone was no longer working, a chemo drug was thrown into the mix. We had no idea what to expect on chemo, thankfully Ethan has not lost his hair. He has fought daily nausea, constant stomach pains, fatigue, even more lowered immune system, and in my opinion lacks the zest a normal child would have to enjoy life and activities. He often has to sit out and watch as he complains that he doesn't feel well. Every week Ethan has to get blood work to make sure his white blood cell counts are okay. He has endured so much and for the most part he handles it very well. Please continue to pray for Ethan over the next few days and weeks. I will keep posting about how he is feeling and how things are going as the days go by.