Monday, June 8, 2009

Prayer Request

It has been two weeks since Ethan has stopped prednisone, so it shouldn't surprise me that today I should find some protein in his urine sample. He has been going between trace and negative for the past 2 weeks. I have been noticing small changes over these past few weeks and even on the lower doses of prednisone that made me think that this might not be over. 

What are these changes? Ethan has been waking up in the morning and does NOT need to pee. Which makes it very hard for me to get a sample. This I now know is not a good sign, when on higher doses of prednisone, he would wake up many times a night and even early in the morning to use the bathroom. When I finally can get him in the bathroom to TRY and give me something, he produces less than a few ounces, again, NOT normal. This morning, Ethan, was again, complaining of stomach pain, which does happen when he gets protein in his urine. His eyes were also slightly puffy this morning, something that also has been getting noticeably worse over these last few weeks. On prednisone, his eyes, become, sunken with dark circles under them. He also has not been wanting to eat, which is another sign of a relapse, but also it could be from the Chemo drug, which also causes loss of appetite. 

Today's sample reads at only 0.3 protein, which is one level above trace and two above negative. Thankfully it is still low enough that things will hopefully turn around. Adam and I have had a cold over this last week, so far Ethan has not caught it, please pray that he will continue to stay healthy. That his protein will not go up, but go back to negative. Lastly, I ask that you pray for Strength for our family. This has been an exhausting journey, particularly these last 8 months. If Ethan does relapse, he will need to undergo a Kidney Biopsy and probably have to go back on prednisone and possibly another chemo drug. I will keep you updated as to how things progress. Hopefully things will turn around!!!!

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