The Final Countdown

The countdown is on, only 2o more days until Ethan is off his Chemo pill. YEAHH!!!! Today was a rough day for Ethan, he did manage to make it until the last hour of school though. He was complaining of stomach aches and nausea, it was also very hot today and he did not drink enough water. It is hard when I can't be with him at school to make sure he is getting the water he needs. If he doesn't drink enough water, we were told that the chemo can irritate the bladder and cause him to pee blood. Ethan is terrified of this happening, so he does try to drink as much as he can, but he is still a child and forgets at times.

We are grateful for each day that Ethan is off prednisone, he is still feeling some of the effects of being on it for the last 7 years. Prednisone is very hard on the body, weakens the bones and can cause eye problems as well. In the last 6 months, Ethan has complained more and more of bone and joint pain. Which is another reason why his doctors decided to try him on this chemo drug. It has been 8 long months since Ethan started relapsing continually. Last summer Ethan enjoyed 5 glorious months off all medications before relapsing, which is the first break in over 2 years.